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Showing posts from February, 2021

Managing Expectations

I was watching a show on a streaming service about people with rare medical conditions and their desperation to find diagnoses and treatment. One episode featured a mother with a little girl around five or six years old. The mother was in distress because the little girl was diagnosed with a rare medical condition causing uncontrollable seizures. The child had hundreds of seizures daily halting any resemblance of normal life for someone her age. The only known treatment was to have a brain surgery resulting in the child most likely being unable to walk or talk for the rest of her life. The distressed mother was seeking alternative treatment. Every day the child went without surgery was a day closer to when it would ultimately lead to death or paralysis through seizure alone. Watching this show, my heart went out to the family and the child. In one of the interviews, the mother was asked about why she was hesitant on the surgery. The mother said, “How do you change your expectations of ...